Catherine, this case sounds like something right up Wolf and Glass's alley.
I don't know if anyone on LACTNET has their email address or if they are
willing to take a consult.  There may be something in their book on
velopharyngeal insufficiency.  My book is at work and presently I am at home.
 I'll check when I get to work later.
I recall at their conference that some babies need NG feedings for both
obtaining adequate nourishment and to avoid aspiration until the problem is
resolved.
Hope this helps.
Ann Perry RN IBCLC
Boston, MA

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