PTP: 2 month old, getting ready to leave the NICU to be at home with his family - has Type 1 SMA (we all know, not a good prognosis) has a Trach & G-tube (through which he gets his mom's milk). Due to his poor tone and inability to suck he has quite the high arch to his palate - the question is, should we be concerned about this at all given the dx, and if so, is there a way to help his palate to flatten/round out?

TIA

Jodie Drum RN, BSN, IBCLC
currently working in Washington DC

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