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Subject:
From:
Barbara Latterner <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Wed, 24 Oct 2001 12:59:32 EDT
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I am re-submitting this post in light of Rachel's comment that the business
of Lactnet gets lost with the likes of disruptive posts such as Mr Knox's.  I
have received no answers and have some material from Archives but would like
to hear anything more that's out there from your collective and individual
wisdom.  Thanks!

In a message dated 10/23/01 3:45:59 PM Eastern Daylight Time, Latternerb
writes:

<< Subj:    galactosemia
 Date:  10/23/01 3:45:59 PM Eastern Daylight Time
 From:  Latternerb
 To:    [log in to unmask]

 I just got off the phone with a very distraught mom who's been told her baby
may have galactosemia and had to wean last Fri.  The baby was seen by a
geneticist who drew blood for testing by venipuncture as well as redoing the
PKU test.  She was told it would take at least 2 wks for test results tho
liver function test results would be available in a couple of days now
(testing done on Fri).  I read in LLL Answer Book that false pos tests can
occur for galactosemia if blood is exposed to heat-baby is 2 wks old today.

  Besides poss test error, my question is why so long to obtain results? (
Ans Book suggests mom try to get priority on testing so less time spent with
baby on formula if results are negative.)  What about BF if baby has Duarte
galactosemia?  I've done a search in Archives but I'm anxious for definitve
answers as is mom.  Poor thing, baby wouldn't latch well first several days,
she finger fed, I had one of those BFing fairy visits and baby breastfed
readily and eagerly, and mom wanted nothing more than to BF and do so long
term, and now this..sometimes life ain't fair.

 Hoping end results are good.  (I did listen to mom, offer support and
suggested she skin to skin, bottle feed next to breast and switch sides
(arms)-she's pumping and freezing her milk; willing to donate if it turns out
she can't BF; my heart goes out to her, I can't imagine being told I couldn't
BF.)

 Thanks for any and all answers; would espec like to hear from docs re ways
to hurry up lab processing.

 Barbara Latterner, BSN, RN, IBCLC
 Brewster, NY >>



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