Anyone have any information on Remicade for treatment of Crohns Ds?
Help.  My client who has been nursing a preemie (dob 12/23/99) and has
been diagnosed with Crohns Ds when the baby was about 4 months old, has
had her condition gradually deteriorate.  We discussed the use of
prednisone while nursing, which seemed to work, until about 3 weeks ago
when her pains became unmanageabl.  Now she is going the a GI specialist
of specialists, and was told they will probably put her on Remicade
(Infliximab) during which time there is no nursing.  She thinks that she
will be hospitalized for 24-48 hours and given a one time dose, but not
sure.  If that is the case, my advice is to pump now to save up enough
milk for 2-3 days, and plan to pump every 2-3 hours in the hospital.

Anyone have any information.  Baby is still only 13 1/2 pounds at 10
months old, has some large motor (trunk) developmental delays which were
just realized--more hardship on mom.  Otherwise baby is healthy, happy,
and "loves nursing."
   I have, in a very low key way, suggested to the mom that some of her
own milk may sooth her GI tract, but she doesn't seem to take it
seriously.  What do you all think?
   TIA.  Michelle Scott, MA,RD,IBCLC

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