>And if breastmilk is "enough", it still doesn't address this child's crying
>need for his oral aversion to be expertly addressed.  This means by rehab
>therapists and dieticians who deal with these issues all the time and have
>a vast body of experience and current research under their belts.

>Of course, the very best  would be for this kid to get a PEG tube(way  more
>comfortable and not visible) and for nutrition to be addressed via tube,
>whilst *eating* gets handled in a relaxed manner, since all are assured
>that the child's nutritional needs are being taken care of, ( and can
>continue to be taken care of) until the child progresses to completely oral
>intake.

Brilliant post, Karen, and I am repeating here to emphasize it.  I have seen
children (with problems) survive on breast milk alone, and do pretty well
for a long time, past 18 months.  But it's probably going to take a LONG
time to get this child over his oral aversion, and if he can be fed by the
PEG tube so that his nutritional needs are met and he can slowly and
gradually and at his own pace adjust to the social and sensory joys of
eating food -- that would be great.

Kathy Dettwyler


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