Anyone who is diagnosed with Lyme Disease, or who thinks
they might have it, should contact the Lymenet. If you don't
have Internet access find someone who does.

My daughter lived through a hellish four years before we
found the Lymenet and a physician who "believes" in this
disease. The researchers and providers who work with LD
struggle every bit as much as we Lactation folk do to
overcome staggering misinformation in the medical
community. We discovered that proper diagnosis and
treatment of this terrible disease is difficult to find. The
politics are disheartening. (Well, *we* know all about
disheartening politics!)

I repeat: get in touch with the folks at Lymenet. They have
research articles, support groups, information on LD
conferences, and can provide referrals to specialists who are
knowledgeable about treating LD. My 21-year-old daughter
would be suffering today if this group had not given us a
referral to a physician who knew how to treat this horrific
disease. (The short version: after 4 years of being assured
she had an unspecified type of arthritis and couldn't possibly
have LD because the single test that was done was negative,
she was treated for LD and recovered within 6 months. This
time last year she could barely walk; now she is on a college
basketball team, skiis and works out 2 hours a day. Enough
said?)

There are at least two published papers on LD and
breastmilk, but you will have to judge the author's
conclusions for yourself.

Here are some good sites. The first is the Lymenet, the
others are sites where written info can be obtained.

http://www.lymenet.org/
http://www.Lehigh.EDU/lists/lymenet-l/#Back_Issues
http://www.lehigh.edu/lists/archives/lymenet-l/special.htm
http://www.sky.net/~dporter/abstract.html

Margery Wilson, IBCLC
Cambridge, MA