Just curious as to whether anyone was familiar with this.

Heiner syndrome is a form of primary pulmonary hemosiderosis or  
bleeding in the lower respiratory tract caused specifically by a  
hypersensitivity to cow’s milk. Children usually develop a chronic  
runny nose, recurrent ear infections, gastrointestinal discomfort,  
and stunted growth.

WHO:    Heiner syndrome usually affects children ages 6 months to 2  
years and has an equal incidence in boys and girls. The exact  
frequency of the disorder is not known but it is a well-recognized  
condition. There is no known racial predilection.

SIGNS & SYMPTOMS:    Children with Heiner syndrome or pulmonary  
hemosiderosis generally present with milder symptoms than adults and  
these symptoms can be either slowly evolving or have a rapid onset.
Children with Heiner syndrome have a typical presentation:

•     Chronic rhinitis (inflammation of the nasal passages) noted by  
nasal congestion
•     Recurrent ear infections
•     Poor weight gain
•     Chronic cough not responsive to inhaler medication
•     Sputum produced from coughing with or without streaks of blood
•     Anemia from loss of blood
•     Poor energy level from anemia
•     History of cow’s milk intake before 1 year of age
•     Occasional acute breathing difficulties from bleeding.

Sharon Lemon RN, IBCLC
Geneva, IL



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