Currently there is a LLL Leader in our community with almost identical
difficulties with her baby.  Because of the submucosal cleft the
diagnosis took 5 weeks.  Her baby is 5 months old and this has been a
very trying time for her, and she is looking for support and to GIVE
support to moms in similar situations.  If you will e-mail me privately,
I can pass the messages on to her.  Also a great web site is :
http://www.widesmiles.org/cleftlinks/pierre.html

also interesting to note is Mandy Habermann's daughter had Pierre
Robin's, for which she developed the Habermann Feeder

Amy Uecker
Mason, OH

             ***********************************************
The LACTNET mailing list is powered by L-Soft's renowned
LISTSERV(R) list management software together with L-Soft's LSMTP(TM)
mailer for lightning fast mail delivery. For more information, go to:
http://www.lsoft.com/LISTSERV-powered.html