>> At 01:58 AM 10/22/98 -0600, you wrote:
>> >Kathleen,
>> >
>> >Some time ago I responded to this post which you originally posted on
>> >Lactnet on September 10 under the title above. You replied that you
>> >didn't know to what post I was referring. I didn't have the post in
>> >front of me when I sent the reply. I now have it and hope this will be
>> >of help to the family.
>> >
>> >You stated that this was "from communication sent to me." It involved a
>> >baby with Langerhans Cell Histiocytosis X, a rare blood disease.
>> >
>> >If you are still able to reach this mother, please send her this
>> >message:
>> >
>> >You are obviously a most devoted and loving mother to have provided so
>> >much care for your son. In addition to the physical care you have
>> >given, you have worked very hard to provide him with the best milk and
>> >to find ways to get him to take it. How disappointing it must be that
>> >he takes so little of his milk directly from the breast.
>> >
>> >What a wonderful place the breast must be for him. In his short life he
>> >has had so many unpleasant things happen to him, but here he finds
>> >comfort and enjoyment. It is no wonder that he falls asleep there. I
>> >wonder if the chemotherapy upsets his stomach, so he really doesn't feel
>> >much like drinking.
>> >
>> >If you need to know exactly how much milk he is getting, you could rent
>> >a scale and weigh him before and after feedings. If you pumped for a
>> >few minutes before you put him to breast, he would get a feeding that is
>> >higher in fat and calories, although it might be harder to tolerate.
>> >Using a supplementer nurser system would allow him to get more milk in
>> >less time. However, that too might be harder for him to tolerate.
>> >
>> >You mention wanting him to nurse like a "normal" baby. I can't imagine
>> >how difficult it must be for you to see him sick all the time. Have you
>> >had any contact with Pilot Parents? Sometimes it helps just to be able
>> >to talk with other parents whose babies are in some way different from
>> >the "average" baby. If you couldn't go to meetings, I am sure there
>> >would be someone who could write to you or talk to you on the phone.
>> >
>> >Have you contacted the hospital where your baby was for the first 4
>> >months? They might be able to refer you to a speech or occupational
>> >therapist who specializes in infant feeding problems. Is there
>> >lactation consultant still available to you? Is there a social services
>> >department at the hospital might also be able to help you find the
>> >resources you need?
>> >
>> >Even if these resources are not available in your area, don't give up.
>> >Given what you have already done, it seems certain that you will find a
>> >way to take the next step. Remember, you need only take one at a time.
>> >
>> >Praying for you and your son,
>> >Bonnie Jones
>> >
>> >
>> >
>>
>> Kathleen B. Bruce, BSN, IBCLC co-owner Lactnet,TLC, Indep. Consultant
>> Williston, Vermont, where autumn is in full color...
>> mailto:[log in to unmask]
Kathleen B. Bruce, BSN, IBCLC co-owner Lactnet,TLC, Indep. Consultant
Williston, Vermont, where autumn is in full color...
mailto:[log in to unmask]
Check these pages out...
http://together.net/~kbruce/proj.html
http://together.net/~kbruce/answers.htm
LACTNET Archives http://library.ummed.edu/lsv/archives/lactnet.html
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