Sharon writes:

<finally diagnosed at 2 1/2 weeks of age as having hyperinsulinanemia.
They determined her pancreas was not producing insulin.  After feeding 
OK the first 2 days, she began not feeding at all well - by breast,
bottle, 
finger-feeding, etc.  She was hospitalized and seen by another LC who 
worked with her in the hospital.  She was bottlefed (to measure
intake) EBM and gavage fed what she did not take by bottle, to increase=
weight gain which had plummeted.>

I have no real answer to your main question, but I suspect that Catherine
Watson Genna is right about a posterior tongue tie. There are parts of
your 
post that remind me of my recent experience with my great-grandson, whose

suck assessment felt almost exactly what you describe, and had a very
obvious tongue tie.

However, to avoid misunderstanding on the part of LN readers, 
the word "hyperinsulinemia" means too much insulin, rather than
<pancreas was not producing insulin> Your description of the baby's
symptoms and treatment sounds to me more like hypoglycemia 
(abnormally low blood sugar). 

Jean
************************
K. Jean Cotterman RNC, IBCLC
Dayton, OH USA

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