Currently there is a LLL Leader in our community with almost identical
difficulties with her baby. Because of the submucosal cleft the
diagnosis took 5 weeks. Her baby is 5 months old and this has been a
very trying time for her, and she is looking for support and to GIVE
support to moms in similar situations. If you will e-mail me privately,
I can pass the messages on to her. Also a great web site is :
http://www.widesmiles.org/cleftlinks/pierre.html
also interesting to note is Mandy Habermann's daughter had Pierre
Robin's, for which she developed the Habermann Feeder
Amy Uecker
Mason, OH
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