Pamela, how sad.
One suggestion, if it is quick enough, is for you to contact Matthew Anew,
MD, who wrote the letter to Pediatrics and who has headed the medical alert
her in the US. He is very generous with his time and information. He has
a full packet of information that he sends out freely and I'm sure that he
would love to help you get this information out quickly.
His address is 3343 Knott Ct. Lancaster, CA 93535.
His e-mail address is [log in to unmask]
Others on this list will probably be of further help. I hope we can give
you what you need.
Pat Gima
mailto:[log in to unmask]