Does anyone have experience working with an infant with Jarcho-Levin?  I have a 38 week twin with this diagnosis which includes some vertebral anomalies.  Baby is AGA and seems to be nursing well so far on day of life 3.  Other twin does not have symptoms of this syndrome but is SGA and has already lost more than 9% of his birth weight.  Mom is an experienced breastfeeder and is not wanting to supplement at this time.  Any input is welcome as I am unfamiliar with this diagnosis.



Anne Duret, RN IBCLC

Springfield, OR



This message is intended solely for the use of the individual and entity to whom it is addressed, and may contain information that is privileged, confidential, and exempt from disclosure under applicable state and federal laws.  If you are not the addressee, or are not authorized to receive for the intended addressee, you are hereby notified that you may not use, copy, distribute, or disclose to anyone this message or the information contained herein.  If you have received this message in error, immediately advise the sender by reply email and destroy this message.



             ***********************************************



Archives: http://community.lsoft.com/archives/LACTNET.html

To reach list owners: [log in to unmask]

Mail all list management commands to: [log in to unmask]

COMMANDS:

1. To temporarily stop your subscription write in the body of an email: set lactnet nomail

2. To start it again: set lactnet mail

3. To unsubscribe: unsubscribe lactnet

4. To get a comprehensive list of rules and directions: get lactnet welcome