Hi Jennifer
This sounds tricky - mainly because of the mother's diet which you
describe as terrible, and it certainly doesn't look good.
I wanted to say that I think you're definitely on the right track in
suggesting doing a very strict elimination diet. I find it works
best if done _totally_ (no bovine proteins whatsoever, and that
includes beef and beef products) for three full weeks, not two. And
then evaluate. Some babies will respond positively after 2-3 days,
or at least respond a bit, enough to keep the mother going.... Some
will take a full three weeks.
I would ask the GI specialist for his references, have never heard of
a mother's milk containing intrinsically larger proteins, though of
course a mother with her own food sensitivity (may Sx of asthma,
eczema, acne, hay fever, bowel problems etc) may secrete foreign
proteins in her milk, to which the baby becomes sensitized.
And no, I've never heard that scalding breastmilk would help.
The _only_ that helps IME is continued exclusive breastfeeding with
the complete maternal elimination of bovine.
Please keep us posted. This sounds like a bad case. Sometimes the
results can seem truly miraculous when it's done devotedly!
Pamela Morrison IBCLC
Rustington, England
At 04:12 26/05/2015, you wrote:
>Date: Mon, 25 May 2015 18:04:29 -0400
>From: Jennifer Light <[log in to unmask]>
>Subject: Bloody Stools & Gerd & breastmilk allergy 6 weeks old infant
>
>Howdy ladies.
>It has been a long time since posting in here, but I have a very
>frustrating case I need help with
>
>A 6 week old exclusively breastfeeding infant. Normal weight gain.
>Infant has been extremely fussy since one week after birth. He
>cries after every feeding and spits up after most feeding. Never
>sleeps more than 30-45 mins and will wake from a dead sleep into a
>screaming fit.
>He was on Zantac and now Prevacid, which is not helping. She tried
>block nursing incase it was overactive let down - which she also has.
>Mom attempted a two week dairy and soy elimination which did not
>help (although I don't know how diligent she was on this diet).
>the old pedi - suggested switching to hypoallergenic formula which
>the mom DOES NOT want to do.
>The new Pedi found occult blood in the stools and sent baby to a GI
>doctor. The GI doctor ALSO suggested formula and told the mother
>that the infant has an allergy the size of the protein to HER milk,
>as in her body makes proteins that are too big, not to something IN
>her milk (ie. it cannot be fixed by diet elimination). GI doctor
>also suggested hydrolyzed hypoallergenic formula. However, mom has
>what I consider to be a horrible diet. Nothing cooked
>homemade. Lots of boxed foods, processed foods, and cans. Examples
>include nutella, hot pockets, pizza rolls, beef jerky, hamburger helper, etc.
>Mom decided to try donor milk first, and the infant seems to be
>doing better with donor milk. The donor eats better!
>
>1. Has anyone heard of the infant being "allergic" to the size of
>the proteins the mother makes in her own milk.
>2. Has anyone used scalding the milk in these cases to help breast
>down the size of the protein (this is clearly not evidence based,
>however I was curious if it would work like it does for lactase)?
>
>I have suggested mom get two weeks of donor milk and do a very
>strict diet: meat, veggies, fruit. Nothing boxed or canned. No
>gluten. No Dairy. No soy. No nuts. This mom will hate this
>diet. However, I am at a loss of how to help them.
---
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