Thanks for sharing - really interesting and great to have this information should we ever stumble across it. I came across this case study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2839326/ and a few other articles about it online. It reminds me a bit of a molar pregnancy - when cells begin to multiply without a "blueprint".
I hope the person who contacted you is able to find a path to healing.
Ellen
Ellen Rubin, MA, IBCLC, LLLL
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