Hello Wise Ones,
A mom I've been working with has been expressing with a rental-level
Ameda, but has found out that her insurance company will pay for an Hygeia Q.
The baby was "only" 2 weeks early, and was frank breech, but her entire
system "looks" like a baby born much earlier. Even past due date, her ability to
feed was still severely compromised. Even after frenotomy ( which I
agonized over making a recommendation since it was SO far back, and baby so
"affected" somehow) baby only went from moving 0.2 oz to 0.4 oz at the one
feeding I observed. Many bottlefeeds take 45-60 minutes. ( Faster flows cause
more leaking, gagging, and shutdown) Mom confirmed her behavior is similar
throughout the daily cycle. Even on the bottle, as of a week ago when I saw
them at their first CST session ( watched a new CST practitioner for an
hour since the amazing one I worked with for seven years moved away....), her
SSB was "broken", milk transfer slow and choppy, and she still gets into
crying jags or shuts down when undereating or overwhelmed. ( Not that I blame
her.) Even after the frenotomy the tongue movement is limited as her
posterior neck and shoulder region remains so tight she can barely open her
mouth and latches shallowly with a shield and not at all without. SO, my
question is: for a baby whose mom is still so reliant on the machine to express
milk, will the Q work as well as the rental by Ameda? Mom is about to travel
with baby to Europe and we've already discussed how the Q is lighter than
the Endeare because it has no internal battery, and how that might play
out. But here, Hygeia is still a fairly new kid on the block, so if anyone has
experience with it, we'd be most grateful. I am going to talk to the mom
later today, to get more updated information since there has been a second
CST session, but I'm not sure things will be that much different. We've
worked very hard on this, but mom is still likely to define "breastfeeding much
better" as baby remaining awake and trying longer without actually
transferring much milk, so we are walking a very fine line here. She asks "how
can I make my baby more dependent on my breast" and I know what she means,
but I'm trying to reframe her expectations, and just keep her baby well fed
and growing and especially developing normal tone, range of motion, and
state control as well, before "making" this adorable little baby do anything
other than what she's doing...
Thoughts?
Peace,
Judy, PS the CST is an OT with Early Intervention expertise, which I'm
very glad about as well...
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