Cathy writes:
I am not sure how therapists are being taught about neck position for
infant feeding, but for children with cerebral palsy or other neurological
issues eat solids, therapists are taught to tuck the chin a tiny bit (stabilize
it back toward the neck, in a mostly neutral position). Perhaps that's the
source of the confusion? Overapplying a special case?
~~~
Hello Cathy and all,
I think we're on to something here. The SLT I've been working with did
exactly the opposite of what I had demonstrated to the parents: held baby
tight, with pressure behind the neck to push it into a light flexion/neutral
and she said it was "more stable." I think her underlying message was "during
bottlefeeding, for a baby dealing with some other issue" - for instance
she thought this baby was low tone. Babies that are having difficulty
bottlefeeding for a period of time long enough to consult an SLT would generally
mean that this baby is having some kind of issue. The babies we are usually
helping to bottlfeed more safely may have state control issues, or other
neuro issues from being early, or even from the current assaults of a "normal
birth" around here. But they may not be permanent issues that are obvious
enough and challenging enough to bring in an SLTor other Early Intervention
specialist. In this situation, I contacted her because a formerly thriving
baby ( but with a mother in misery) had precipitously seemed to lose the
ability to get enough to eat at breast, or to sleep normally, and was
faltering in weight. I think that because we are the one profession was actually
understands deeply and thoroughly what physiologic and emotional normal is
for human little ones, we look with different eyes. A baby who can
bottlefeed well enough not to fall off growth curves pretty much gets passed
over, no matter how many other, sometimes obvious, other times subtle, issues
we see. Even though this baby was later evaluated and found to be of
"normal tone" and not qualify for services, I have serious thoughts that in the
future he will be back in EI for something that wasn't big enough to see
now, but will become more obvious later. I feel like I see this more and more.
Even though Wolf and Glass's book is '92 it still seems to be the standard
for treatment, and again these babies are not "normal" babies who got off
track and we might be able to help them get back on with our supports,
information and temporary interventions. The titles may be very potent: Wolf
and Glass's book is Feeding and Swallowing Disorders, Cathy's is Supporting
Sucking Skills in Breastfeeding.... two different sets of eyes looking, and
what they are looking for, two different views of what the outcome could
be: safer bottlefeeding for children with disorders vs normal
feeding/nurturing at breast with all the tied-in mothering that can go with it. It's not
that SLTs are against breastfeeding, but their profession was born in a
time when mostly no one was thinking of a baby breastfeeding as a normal
developmental skill worth fighting for, whereas ours was born of the idea that
breastfeeding (like bipedalism) is a normal developmental skill for humans
which our bodies are well-adapted to complete ( unless something major is
standing in the way) and therefore always thought of as the "default" goal.
Although we live in a culture that still does not accept this, it is a part
of our view of normal human skill acquisition, and bottlefeeding or other
assistive feeding scenarios are what we settle for when the norm cannot be
achieved. The fact that bottles are widely thought of as normal and
necessary make our roles harder ( witness the new ads for American Reunion, where
Alyson Hannigan's character indicates her motherhood status by holding a
bottle in the photo.) Perhaps someday Wolf and Glass and Cathy Genna will
co-write a book!
One can dream...
Peace,
Judy
Judy LeVan Fram, PT, IBCLC, LLLL
Brooklyn, NY, USA
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