Hi Wendy,

I'm not sure I fully understand your message correctly, but PKU is NOT the 
same as galactosemia. With the latter, NO breastmilk is allowed. With PKU, a 
certain amount of breastmilk is fine.
It should just be well checked, as breastmilk contains more phenylalanine 
than the special PKU-formula (oops, artificial milk... hahaha... not meaning 
to render a scientific odour to the product... ;-)).
As the infant with PKU cannot metabolize phenylalanine, it must not receive 
too much of it, but all the other constituents of breastmilk are also for 
the PKU-infant very important.

Kindly,

Marianne Vanderveen IBCLC, Netherlands (catching up with laundry, 
administration and e-mail after three weeks in California and even meeting 
Jaye Simpson at the Folsom Lake-campsite ! ;o))

----- Original Message ----- 
From: "Wendy Blumfield" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, July 30, 2009 1:27 PM
Subject: Re: [LACTNET] PKU


>I understood that it isn`t the precise measuring of food that is the issue 
>with PKU but that the infant must not have natural protein so even a 
>symbolic breastfeeding may be harmful.  I am not an expert in this field so 
>don`t quote me on this.  But I do know that the consequences of undiagnozed 
>PKU can be disastrous and irreversible in terms of brain development. 

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