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Date: | Wed, 20 Aug 2008 08:28:30 -0400 |
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I can share the frustrations of babies born with a cleft, since I have one of
the lip and hard palate. I was born in 1966 before IBCLCs and specialty
feeders... my mom fed me by a demitasse cup (which she says took forever,
that's all she did all day). After many procedures and 9 years of braces, I
have a wonderful result (lots of people tell me they can't tell) however I can't
drink well out of a McDonald's straw (it's too big!) or blow up a balloon without
a lot of effort. Imagine trying to drink out of a straw with a hole in it, can't be
done. That's not to say that we can't adapt in some way, I find that I
compensate and make most things work though I don't know how I do it. My
plastic surgeon said it was a miracle that I could play the flute in middle and
high school. She said no matter how good we think we do the repair, 99% of
the time there is still a hole. And a little hole still allows air to leak and is
difficult to achieve a seal. It's a perspective that unless I had one, I wouldn't
be able to understand. Thanks to all of you that encourage mommies to nurse
a baby as I do... some little ones can and others can't because the clefts and
repair methodologies are all different.
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