Arthrogryposis a descriptive term for limited joint mobility.  There are many different causes.  This may start very early in the pregnancy.  The function and structure  of the joints develops as the fetus moves.  This condition is not progressive.
  
I have worked with infants who have had limited movement because the uterus was too small because of multiple gestation or because there was limited amniotic fluid.  Physical therapy was very helpful for many of these infants.
 
Some of the other infants had neurological problems and the arthrogryposis was one of their symptoms.  One common feature that the babies shared was excessive amniotic fluid that may be related to not swallowing while inutero.  Some of these babies have had a very short life span.  I found an article that was was informative on the web www.emedicine.com/ped/topic142.htm 
 
Please let us know who this goes.  Sincerely,  Rachel Wahl
 
      > > Date: Wed, 5 Mar 2008 08:13:49 -0800> From: "Jaye Simpson, IBCLC" <[log in to unmask]>> Subject: Arthrogryposis> > I am working with a mom (haven't seen her in person yet) whose baby was born> with Athrogryposis. Baby has club feet and his hands are flat on his arms.> Baby started off gaining well gaining 1 pound from day 3 to day 14.> Somewhere between the 2 wk check up and the 10 wk check up baby stopped> gaining that well (gaining only a pound) and between the 10 wk and 11 wk> check up baby lost 4 ounces. Mom is now supplementing and notes that her> supply seems to have crashed. Baby was SGA and 2 wks late - I believe he> weighed in at about 6' 14". I got all this info while driving last night so> couldn't write it all down and am doing the best I can from memory. (No, I> don't hold the phone to my ear.I wear a headset.) :-)> > > > I suspect that since Arthrogryposis is a joint issue that there must be> something going on with baby's ability to feed (jaw joints) but since I have> ZERO experience with this I need input and fast. Any links to information> will be helpful, anyone who has worked with babies with this condition and> can offer me insights would be very helpful.> > > > Thanks in advance!> > Warmly,> > > > Jaye Simpson, IBCLC, CIIM> > Breastfeeding Network> > Sacramento, CA> > www.breastfeedingnetwork.net
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