>I would like anyone having helped a mother with an infant diagnosed with
>the
>metabolic disorder Medium Chain acyl CoA Dehydrogenase "MCAD" to respond.
Hi Camille,
I can't help with support for feeding but the parents may appreciate being
put in touch with the following organisations.
www.fodsupport.org
Apparently the organisation has a good newsletter and MCAD is certainly
contained in the family stories.
www.mitoaction.org
Mito Action has a teleconference for those with new diagnosis (or their
parents), usually the second Friday of the month, although I think it's the
3rd Friday in June due to a public holiday.
www.umdf.org
I'm sure that the family will appreciate your support in this situation.
warm regards
Suzie Heaton
Australia
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