One of my good friend's daughters delivered twins - one diagnosed with Beckwith-Wiedemann Syndrome.    They have a good web site at beckwith-wiedemannsyndrome.org.  Has anyone any experience with this? She breastfed her first child, and is already pumping for them, as they're in NICU as preemies.
   
  I'm in Chicago at the LLLI conference and will check with friends here, but thought I'd as you, also.  I can't do a good search of Lactnet as my computer access is "iffy" so please e-mail me directly at [log in to unmask]
   
  Thanks!
   
  Jeanette Panchula, BSW, RN, PHN, IBCLC
  California, USA
   
   

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