Hi Leia - 

Just personal experience here, and with biological children, not adoptive 
nurslings, but I do have hyperprolactinemia without a documented 
prolactinoma.  It was thought to cause some of my struggles with fertility 
issues; however, I did conceive without medical assistance eventually.  Before 
ever conceiving I had prolactin levels as high as 600.  Three MRIs have failed 
to show any tumor.  Since my first pregnancy in 1997, I have been 
continuously pregnant, lactating, or both, so my prolactin levels have been 
influenced by my reproductive state and have varied quite a bit.  For obvious 
reasons I have never been on medication to supress lactation!  I had to wage 
a few battles with my own physicians & colleagues, who initially insisted that I 
not breastfeed at all and begin treatment with bromocriptine right away.  
After much research, I decided that without a documented prolactinoma I was 
not willing to give up my dreams of breastfeeding, and instead have had 
frequent monitoring to watch for any signs of tumor growth (as there could 
have been a mass too small to detect on MRI).   So far, so good - ten years, 
ten months and counting...

The only obvious issue I have had that I believe relates to my excessive 
prolactin is a significant problem with oversupply.  This has required quite a bit 
of management on my part in order to make breastfeeding comfortable and 
successful.  The condition may work in your mom's favor, however, in terms of 
initiating and maintaining her milk supply.  I wonder.  Do keep us posted.

Karen


"We had a mom come in who plans to adopt in the near future.  She is
 interested in breastfeeding, exclusively if possible.  She has
 hyperprolactemia and has lactated before due to this condition.  She had been
 taking medication to suppress lactation for some time and has stopped
 taking it very recently.   
Has anyone known a mom nurse with this condition?  Are there any
 concerns or issues we may want to be aware of?  I am particularly interested
 in knowing if you know of an adoptive mother.  She suspects this
 condition is the reason she is unable to become pregnant, but is hoping it
 will help her bring in a decent supply.
Thanks in advance."

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