Sender: |
|
Date: |
Thu, 18 Nov 2004 23:32:47 EST |
Reply-To: |
|
Subject: |
|
MIME-Version: |
1.0 |
Content-Transfer-Encoding: |
7bit |
Content-Type: |
text/plain; charset="US-ASCII" |
From: |
|
Comments: |
|
Parts/Attachments: |
|
|
Anyone have any experience with a child with profound neurological issues
like this? The parents are very hopeful that he will have some recovery,
but his test results are grave, so we just don't know. It's been very
painful for this mom to deal with healthcare providers who are trying to
make her "face reality." Several even suggested to the parents that they
simply don't feed him, and another nurse told her while she was cuddling the
baby "You know he won't be this cute and cuddly when he gets bigger."
Jennifer Tieman
Jennifer, I have never had a mom who regretted pumping for her baby even if
the baby was never able to go to breast. This may be the one positive thing
she can do for this baby. It sounds like the prognosis for much recovery is
poor but I'm amazed a nurse would say to a mom that he might not be as cute and
cuddly like this forever. We don't starve babies any more. When I was first a
NICU nurse this was an option presented to parents but I have not heard of
this in years. Mom will face reality in her own time. Meanwhile I would
offer her your PIS. Sounds like her supply is great and she may do well with it.
Pumping 8 times per day with no end in sight can be daunting so we should
make it as easy as possible--which means a fully automatic electric pump. If
her supply is as good as it sounds the Pump In Style might just do it for her.
And, yes, it's possible that she may be able to get by with 5 or 6 pumpings
per day. She'll just have to watch and see what her supply does. Your other
option is to contact your local Medela rep and ask if they can do anything for
this mother. They might offer her a grant pump.
This is a heartbreaking situation. This family is so lucky to have you!
Kathy Boggs, RN, IBCLC
***********************************************
To temporarily stop your subscription: set lactnet nomail
To start it again: set lactnet mail (or digest)
To unsubscribe: unsubscribe lactnet
All commands go to [log in to unmask]
The LACTNET mailing list is powered by L-Soft's renowned
LISTSERV(R) list management software together with L-Soft's LSMTP(R)
mailer for lightning fast mail delivery. For more information, go to:
http://www.lsoft.com/LISTSERV-powered.html
|
|
|