>>>I received a phone call from a mother who is in the diagnostic stage of
determining if she has Lupus - all the tests so far are coming up
positive.  She is currently breastfeeding an 8 month old child and would
love to communicate with any other mothers that are dealing with Lupus.
 According to what I found in the archives the usual med (Plaquenil) is
 o.k..    If you know of any mothers that might like to communicate with
her via e-mail, please let me know.  Thanking you in advance -
Evelyn Landry, RN, IBCLC, RLC
Lafayette, Louisiana<<<
*******************

Evelyn, you may give my name and email address to the mother w/ a presumed
dx of lupus.  I have lupus and was in her position 11 years.  My son was
9-months old at the time I presented with symptoms and my son was still
nursing numerous times per day.

Hale (2004) rates Plaquenil a lactation risk level 2.  Plaquenil was a
godsend for me.  It improved the quality of my life significantly.  I am
still on Plaquenil and have never had any side effects.  The med is
typically offered before a confirmed diagnosis is made.  (It can take years
to get a definitive diagnosis.)  I remember my rheumatologist telling me
when I was starting Plaquenil that I may not notice relief in Sx for a few
weeks to months.  I noted marked improvement in my Sx in just 2 weeks.  I
continue to have annual eye exams while on the drug to monitor for deposits
on my retina that can lead to blindness--no evidence of that happening with
me so far.

I would be happy to talk to the mom regarding breastfeeding and/or lupus.

Brigitte Hall, RNC, MSN, IBCLC
San Antonio, Texas  USA

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