Hi, Lyla.
       You wrote, "Do you mean like skin tags but on the ears?  not obvious
ones, but I must admit I didn't examine closely for that, as I had never heard
of this condition!"
       I'm not sure either, Lyla.  I didn't see the baby until after his
surgery, when the ear tags were removed and the jaw was reshaped to better match
the other side.  Prior to that, the mom and I just spoke on the phone about
what we thought was a nursing strike.  But I'm guessing they are just skin tags,
not involving the cartilage of the ear, because the pediatrician just wanted
to rubber-band them so the blood supply would dry up and they would fall off.
I'm thinking it would not be possible to rubber-band a "tag" that had any
cartilage in it.
       You also asked if there are any other symptoms that can accompany the
syndrome.  I really don't know.  I'm not at all an expert in this syndrome.
What I know, I've shared with you.  But if there is a children's hospital with
a craniofacial team in your area, you might be able to ask someone there what
else we might look for.
       Dee Kassing, BS, MLS, IBCLC
       Collinsville, Illinois, in central USA

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