Happened to see a family this week that was told the baby may have
Beckwith Syndrome. Have not researched it yet. The baby has not regained
birth weight in three weeks , has a large active tongue,. has difficulty at
breast and bottle. Intermittent at breast , does transfer milk but
inefficiently , even less efficient at bottle. Feeding plan is in place to
get weight moving in right direction also plan to ask baby's doctor refer to
OT . Any one with experience with this ?
Everything else with baby is WNL .
Beadie Cambardella RN BSN IBCLC
Atlanta
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