Dear Lactnet Friends:
My local medical library doesn't carry the Journal of Perinatal Medicine.
This article looks to be fascinating.
Here is the paper I am looking for:
J Perinat Med. <https://www.ncbi.nlm.nih.gov/pubmed/27564695#> 2017 Apr
1;45(3):375-382. doi: 10.1515/jpm-2016-0205.
Breast milk feeding in infants with inherited metabolic disorders other
than phenylketonuria - a 10-year single-center experience.
Pichler K
<https://www.ncbi.nlm.nih.gov/pubmed/?term=Pichler%20K%5BAuthor%5D&cauthor=true&cauthor_uid=27564695>
1, Michel M
<https://www.ncbi.nlm.nih.gov/pubmed/?term=Michel%20M%5BAuthor%5D&cauthor=true&cauthor_uid=27564695>
2, Zlamy M
<https://www.ncbi.nlm.nih.gov/pubmed/?term=Zlamy%20M%5BAuthor%5D&cauthor=true&cauthor_uid=27564695>
2, Scholl-Buergi S
<https://www.ncbi.nlm.nih.gov/pubmed/?term=Scholl-Buergi%20S%5BAuthor%5D&cauthor=true&cauthor_uid=27564695>
2, Ralser E
<https://www.ncbi.nlm.nih.gov/pubmed/?term=Ralser%20E%5BAuthor%5D&cauthor=true&cauthor_uid=27564695>
3, Jörg-Streller M
<https://www.ncbi.nlm.nih.gov/pubmed/?term=J%C3%B6rg-Streller%20M%5BAuthor%5D&cauthor=true&cauthor_uid=27564695>
2, Karall D
<https://www.ncbi.nlm.nih.gov/pubmed/?term=Karall%20D%5BAuthor%5D&cauthor=true&cauthor_uid=27564695>
2.
Author information <https://www.ncbi.nlm.nih.gov/pubmed/27564695#>
Abstract
BACKGROUND:
Published data on breast milk feeding in infants suffering from inherited
metabolic disorders (IMDs) other than phenylketonuria (PKU) are limited and
described outcome is variable.
OBJECTIVE:
We aimed to evaluate retrospectively whether breastfeeding and/or breast
milk feeding are feasible in infants with IMDs including organic acidemias,
fatty acid oxidation disorders, urea cycle disorders, aminoacidopathies or
disorders of galactose metabolism.
METHODS:
Data on breastfeeding and breast milk feeding as well as monitoring and
neurological outcome were collected retrospectively from our database of
patients with the mentioned IMD, who were followed in our metabolic center
within the last 10 years.
RESULTS:
Twenty patients were included in the study, who were either breast fed on
demand or received expressed breast milk. All the infants were evaluated
clinically and biochemically at 2-4-week intervals, with weight gain as the
leading parameter to determine metabolic control. Good metabolic control
and adequate neurological development were achieved in all patients but
one, who experienced the only metabolic crisis observed within the study
period.
CONCLUSION:
Breast milk feeding with close clinical and biochemical monitoring is
feasible in most IMD and should be considered as it offers nutritional and
immunological benefits.
I will be happy to pay for any copy or postage costs.
warmly,
Nikki Lee RN, BSN, Mother of 2, MS, IBCLC, CCE, CIMI, ANLC, CKC
Reviews Editor,* Clinical Lactation*
www.nikkileehealth.com
https://www.facebook.com/nikkileehealth
*Communications are confidential and meant only for whom they are
addressed.*
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