In a message dated 97-06-23 01:55:27 EDT, you write: > >Date: Sun, 22 Jun 1997 17:38:33 +1000 >From: Johnston <[log in to unmask]> >Subject: Prader-Willi syndrome > >Has anyone had experience with breastfeeding/breastmilk feeding a baby = >with this rare condition? > >I would like to hear how mothers have managed feeding in the early = >months as the Prader- Willi syndrome is characterised by hypotonia = >(muscle weakness). At what stage does the hyperphagia (eating excessive = >amounts of food) become apparent, and how has this been managed in the = >breastfed infant? >Thankyou, >Joy Johnston FACM, IBCLC >Melbourne, Australia >[log in to unmask] >=00