Hi, I know a now 34 month old,that was a very slow weight gain, major spitter -upper as an infant (family dr. R/O pylorric stenosis) who it's been suggested (by an MD, though neither confirmed nor denied by the ENT that scoped his throat) has tracheolaryngalmalasia... Anyone out there have experience with how this condition may or may not have affected both the reflux issue and the slow gain due to poor suckling bc of possible involvement of soft palate...?After a rocky start, baby would nurse 45 minutes every 90 minutes around the clock. Lost 10% initially, regained ten pound birthweight at 9+ weeks, doubled at 1 year, tripled at 33 months. Mom reported no swallowing sounds nor any let down feelings while nursing this one, though reports noticing the difference bw this older sib and second unaffected baby; older sib still does not get let down and does not make much swallowing sounds unless nursing at same time as younger sib.... Child also has other gross motor/low tone issues, didn't crawl until 12 months, walked at 21 months, being evaluated for PT, OT and speech therapy now for mild delays. Cognitively is exceptionally bright, reads some, uses computer... Can anything be done if future sibs have same condition (mom has paternal uncle with three children with similar condition) to improve nursing/weight gain? I've always been curious about this and hope to tap the resources on Lactnet to satisfy that curiosity! thanks, Anne E. Robb, MAT, LLL mailto:[log in to unmask] Tangent, Oregon