I haven't read the original note that prompted this reply, But I wanted to make a comment.In Australia all babies are tested for PKU,Hypothyroidism Cystic Fibrosis and or galactosaemia. All are done on heel prick blood test after 48 hrs of Protein feeds (colostrum)the time being to get accurate response for the pku.I've not heard of a change for this yet. A dietitian at Royal Children's Hospital,Melbourne Dorothy Francis has developed a protocol for babies who are breastfeeding on diagnosis (usually one week) to prevent their having to wean The usual management used to be low phenylalanine formula, no breastfeeding.However she now has the mothers express(pump) milk for 24hrs then depending on blood levels start with small amounts of the low phenylalanine formula then a breastfeed.Dorothy Francis presented a paper on her work at the Breasfeeding Conference in Melbourne in August. Michele Meehan