Had a case many years back where the mom had been exposed to Fifth disease during pregnancy and delivered an IUGR baby. Once born infant still never grew properly. After many months of test and different doctors they found this child had an insult to the pituitary gland and was placed on growth hormones. I had always stated to the mother that the infant had an unusual feeling palate and never nursed correctly. Later it was discovered that the child had a sub-mucal cleft and mom informed the doctor, "my lactation consultant always said something wasn't right with her mouth". This child is now close to school age and still very small for age. She met her early milestones without problems, but as time went along delays have shown up. This mom was also a real trooper. She pumped, nursed, SNS, and bottle, what ever the doctor and I could come up with for her to try she was willing. The mom has since had another child that nursed beautifully and gained unbelievable. Good luck and a big pat on the back to you, the mom and the doctor. Crystal Stearns RNC, MS, IBCLC Mercy Memorial Health Center Ardmore, OK 73401 580.220.6432 -----Original Message----- From: Trish Warder [mailto:[log in to unmask]] Sent: Thursday, July 24, 2003 2:52 AM Subject: Gentian violet needed..plus update on an unusual case (1 year on) Hi there, I mostly lurk and thoroughly enjoy the discussions. I look forward to meeting some of you at the IlCA conference. This will be my second one. I am keen to get some more gentian violet 1% - could someone coming from North America to conference bring me some? Please let me know-I would really be appreciated- here in NZ we cannot access it- however (in comparison) domperidone is easily accessed here- in fact any midwife can prescribe this herself. I wish to give a brief up date on a case I posted last Aug/Sept, "an unusual case" (the baby is 1 year old this month). I first met this babe at approx the third day of life (in the hospital)-term baby, normal birth, no drugs, born to a competent para2 who had previously fed for 18 months. At our breastfeeding group on the p/n ward, Mum stated she was concerned that baby hadn't fed much in the previous 24 hours. I followed up later and observed a beautiful fed. About 1 week later her midwfe requested my input, stating that the baby wouldn't feed. This began 7 intense months of contact between this family and myself. The baby could breastfeed and she could bottle feed at times but the volumes taken were small- many health professionals (paeds, speech language therapists, childrens hospital, dietician) have been involved (and continue to do so). However there has never been anything abnormal identified with assessments and tests and she is a content and developing well with her milestones. The thing is she has needed a nasogastric tube down all this time (she's now 1 year as I mentioned)- she never had an artificial milk in the first 7 months of life- awesome mum!...but because she never took adequate volumes via breast/bottle etc, she had the N/G tube and she also required extra calories be added to mum's milk (duocal) to ensure growth (mum pumped well and had lots of milk). She is 3rd percentile or less but growing (albeit with the extras) and she is happy and healthy. She started solids early 4-5 months (in desperation)- at 1 year she eats a good variety of food textures from spoon and finger foods, drinks 70-100ml via sipper cup at each mealtime BUT STILL HAS DUOCAL ADDED TO 2 MEALS/DAY AND 30ML TOP-UPS VIA THE N/G TUBE AT 1 YEAR OF AGE. (the team are having another attempt at weaning this lovely baby off the duocal and n/g tube). Sorry this hasn't been that brief ...I would love all your comments. I did not have much feedback from lactnet when I first posted but I can truly say it has been the most intersting case that I have worked with (I've been working with families for about 20 years). kind regards, TrishWarder, IBCLC [log in to unmask] *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html