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From: Rebecca Cooper <[log in to unmask]>
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Date: Tue, 05 Feb 2002 07:13:07 -0600
Subject: [The Shop] little carter update
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mini update - they found that he's dropping fat in his stools so I assume
there will be addtional testing to find out why, but that points to a
malabsorption disorder of some kind. Normally they try and put a kid with a
malabsorption disorder that is having trouble digesting fat on a special
formula, and of course the ped GI doctor wants to do this pending another
test to make sure the infection's gone, but my pediatrician (who I called to
talk to last night) says that we don't want to put him on formula. Why? The
testing also turned up the same immune deficiency that James had (IgA), and
breastmilk is the potentially only thing standing between him and infection
hell like James had. It's not a serious immune deficiency like some of them
are, but it means their mucous membranes (GI tract, nose, ears, lungs, etc.)
are much more susceptible to infection and need more and longer courses of
antibiotics since the body's natural defenses aren't present. James was
constantly ill as a baby, hospitalized several times with pneumonia, had
tubes for his ears VERY early, and still has trouble fighting off bacterial
infections. He was put on formula at 4 months (totally FFed by 6 months, I
did pump for a while though) and that's when the problems started. I never
knew IgA was secreted in breastmilk by the mother - now I know - so in my
ped's opinion it's imperative that I keep nursing if possible. This is
good - means we don't roll over and start formula unless there is a real
medical necessity.

So, we still haven't pinpointed the cause of the mucous other than we know
we are dealing with some kind of malabsorption. There are a lot of things it
could be.

Just thought I'd update you bitches (particularly Diane, in case you want to
pass that on to Lactnet).

Oh, the Shelly !!!!!!!!!! thing struck me funny as hell. What a weirdo.


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