Quick update:  tests done ruled out pyloric stenosis, malrotation and
esophageal stricture.  Mom is going to call this clinic tomorrow and see if
she can get in to see this doc:  http://www.msbfmedclinic.com/ (a million
thanks for the referral, Laurie!).  She's also got one last appointment
that's already booked with a pediatric GI specialist.  Thus far, the only
conclusion is severe reflux.  Mom is researching the various reflux meds
that have been recommended (both zantac and nexium, among others).

Mom is eager to see the doc at the MS BFing clinic and be evaluated as a
dyad, VS seeing so many different practitioners who are treating mom and
baby separately.

I will follow up with what the eventual treatment plan entails.  Thanks for
your amazing support!
Amy

On Thu, Feb 18, 2010 at 6:57 PM, Amy West <[log in to unmask]> wrote:

> Thanks for all the feedback on this!
>
> Mom did see an IBCLC at the hospital where she delivered.  Latch was
> assessed as being fine, but to my knowledge, baby's oral anatomy and suck
> were not assessed.
>
> I completely agree that she's gotten bad medical counsel at more than one
> turn in her ordeal (both for her and for the baby).  She is aware of this
> and is seeking other professionals to help sort out the problems that have
> stemmed from this. (The steroid shot was administered by an ER doc; the same
> doc also prescribed percoset for the pain, as well as the two antibiotics).
>
> Baby is having an ultrasound and xrays today to rule out pyloric stenosis.
>  Results should be back sometime today or tomorrow - I'll keep the list
> posted.
>
> Thanks again to those who sent referrals - much appreciated! Mom is looking
> at them and is choosing a couple to contact.
>
> The help you ladies have offered on this has been invaluable so far.  We
> are really looking forward to this little guy feeling better soon, and
> hopefully getting mom's supply going again.  Thank you!
>
> Amy
>
>
> On Thu, Feb 18, 2010 at 5:34 PM, Sheena Carnes <[log in to unmask]>wrote:
>
>> She needed someone to assess the latch, something was going on to cause so
>> much pain and damage.  Possibilities could be short frenulum (tongue
>> tie) shallow latch, improper positioning.  Also, what kind of pump was she
>> using?  She may have needed larger flanges if she wasn't getting good
>> drainage during pumping. A hospital grade or rental grade pump is the best
>> for around the clock pumping.  Lecithin is helpful for moms who experience
>> frequent plugged ducts.  However, the plugged ducts are a sign of baby and
>> pump not doing a good job of draining the breast.  I'd definitely
>> encourage
>> this mom to re-lactate.  Hope she is able to find some local help ASAP :)
>>
>> Sheena Carnes, BSN, LLL Leader
>> Waverly, IA
>>
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>
>

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