Thanks Jayne,
My first try was Twin style and Dancer hold with mum supporting him and a
roll towel under her breast to get him further under her breast/ body
position. Supplies are at a cost and the only bottles/Formula Kit are that
so hard plastic. but the Mustard (loke Hot Dog mustard bottle) bottle fitted
the lid and after making a needle hole on the white stop cap (of Formuls
bottle and cutting the teat 'Habermann' would have been proud as I
experimented)('Rosti' didn't get a look in).
Regarding Exercises I tried the stroking and the tapping and Kanga kared him
straight off when I discovered he hadn't fed for 24 hours only licked the
nipple and the Staff nurse had said he was Feeding in the report!!!
I tried all different techniques to get him to latch properly each feed- but
we suceed for about 2-3 minutes of sucking each feed but his suckling wasn't
strong I hope. With,  what I've shown Mum and Ma in Law, hopefully, they
will persevere. he will probably have been Discharged when I go back today
as Mum was a Normal delivery and 'she should not still be in the ward'(staff
Thinking) Bugger the Baby's problem although the Paed me by saying the baby
had to stay for at least 2 days!
Thanks for your ideas!
Robyn

-----Original Message-----
From: [log in to unmask] [mailto:[log in to unmask]]
Sent: Tuesday, January 16, 2001 8:53 PM
Subject: nursing and Down's Syndrome


Hans wrote:
<< I have adapted a bottle(squeezy mustard
 variety) with small hole in the little white lid block of a normal bottle,
 to the flow and a teat cut to be like a  scoop/spoon for Mum to try as her
 supply improves and taught her to express, Massage and express every 3
hours
 and have been getting around 15mls. She is enthusiastic so hope that
 tomorrow i can see her able to feed him herself. >>
I don't know what your supplies are nearby, but someone's suggestion of
stroking the tongue inside the mouth or through the underside of the jaw,
maybe some light tapping to get the tone up, lots of skintoskin contact,
swaddling the baby in flexion to try and improve overall tone... not sure
but
some of this might help. Baby might be able to latch with some position that
was ultrasupportive, Dancer hand with jaw support, and take eyedropper at
breast? Im not an expert, is there a physical or occupational therapist who
specializes in working with feedings challenges and you could adapt their
strategies to this babe?
Judy LeVan Fram, Brooklyn, NY

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