Jennifer,

try http://infantproctocolitis.org <http://infantproctocolitis.org/> it is an excellent site


Gail Hertz, MD, IBCLC,FABM
author of the Little Green Book of Breastfeeding Management
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> On May 25, 2015, at 6:04 PM, Jennifer Light <[log in to unmask]> wrote:
> 
> Howdy ladies.
> It has been a long time since posting in here, but I have a very frustrating case I need help with
> 
> A 6 week old exclusively breastfeeding infant.  Normal weight gain. Infant has been extremely fussy since one week after birth.  He cries after every feeding and spits up after most feeding.  Never sleeps more than 30-45 mins and will wake from a dead sleep into a screaming fit.  
> He was on Zantac and now Prevacid, which is not helping. She tried block nursing incase it was overactive let down - which she also has.
> Mom attempted a two week dairy and soy elimination which did not help (although I don't know how diligent she was on this diet). 
> the old pedi - suggested switching to hypoallergenic formula which the mom DOES NOT want to do.
> The new Pedi found occult blood in the stools and sent baby to a GI doctor.  The GI doctor ALSO suggested formula and told the mother that the infant has an allergy the size of the protein to HER milk, as in her body makes proteins that are too big, not to something IN her milk (ie. it cannot be fixed by diet elimination).  GI doctor also suggested hydrolyzed hypoallergenic formula.  However, mom has what I consider to be a horrible diet.  Nothing cooked homemade.  Lots of boxed foods, processed foods, and cans.  Examples include nutella, hot pockets, pizza rolls, beef jerky, hamburger helper, etc.
> Mom decided to try donor milk first, and the infant seems to be doing better with donor milk.  The donor eats better!
> 
> 1.  Has anyone heard of the infant being "allergic" to the size of the proteins the mother makes in her own milk.
> 2.  Has anyone used scalding the milk in these cases to help breast down the size of the protein (this is clearly not evidence based, however I was curious if it would work like it does for lactase)?
> 
> I have suggested mom get two weeks of donor milk and do a very strict diet: meat, veggies, fruit.  Nothing boxed or canned.  No gluten.  No Dairy.  No soy.  No nuts.  This mom will hate this diet.  However, I am at a loss of how to help them.  
> 
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