I have pretty close knowledge of one girl who is about 13 now with agenesis
of the corpus callosum. She is somewhat "different looking" but functions
quite well. She is in learning support at school - always was - but seems to
be at least close to grade level. She has some motor problems (but attends
dance class) and does not have any feeding issues that I know of, but I
didn't know the family until she was 4 years old.

Gail
Gail S. Hertz, MD, IBCLC
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>
> Recently they got the results of testing that diagnosed him with
> agenesis of the corpus callosum.  All his feeding problems are linked to
> this, according to what the mom has been able to find out.
>
> Has anyone ever worked with such a child?  Do you have suggestions for
> this mother?  We are working on building up her supply again; that is
> not an issue.  She is just searching for someone who has any information
> about this problem.  Docs say he could have anything from a learning
> disability to severe retardation. I am concerned that this may be a
> situation of severe problems because, so far, other than slow weight
> gain, he is not making any progress at passing milestones.  He gets
> speech therapy and physical therapy, but we are not seeing progress.

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