YEs, it is indeed rare, however, breastfedding need not be stopped, indeed it would be recommended that breastfeeding continue...
--
Andrea Syms-Brown.IBCLC,RLC,CIMI 
Baby in the Family LLC 
590 Vanderbilt Avenue, 
Brooklyn, NY 11238. 
1(917)864-7457.


-------------- Original message from tibs <[log in to unmask]>: -------------- 


> I am in touch with a mother whose baby has just been diagnosed with this 
> syndrome and she has been advised to stop breastfeeding- has anyone come across 
> this? 
> The statistics are 1 in 100,000 !! 
> 
> Congratulations also to the ladies who started and manage Lactnet on receiving 
> the Innovation Award. 
> 
> Marilyn Stollmeyer 
> Trinidad-the smallest island to play in the World Cup 
> West Indies 
> 
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