Jeanette,
These types of babies scare me. I've been a practicing lactation consultant for 25 years. Just off the top of my head I can think of several of them that ended up with a CP diagnosis, 2 with sensory integration disorders, 4 with rare metabolic disorders, 1 (a pediatrician's baby) with a rare chromasomal defect causing developmental delays, several with late diagnoses of Torticollis, 1 with some type of problem with the plates in the skull, 1 with galactosemia, Many with subdural hematomas predominately caused by vacuum extraction deliveries....and who knows how many more that I lost contact with before a diagnosis was made. the CP babies where 14 and 18 months old before they were diagnosed.
Holly McSpadden, IBCLC
-------------- Original message from Jeanette Panchula <[log in to unmask]>: --------------
> In the last 5 years I've had 3 babies who just refused to latch on - but NOT
> the usual "I have trouble opening my mouth because of horrific labor" (they
> opened WIDE) or "mom has no milk so why bother" (Mom's milk was POURING) or
> "mom's nipple is so flat I get no stimulation" (only one, the latest, had
> taut breasts and flat nipples).
>
> They just crawl up to the breast, go to the nipple place mouth over the
> nipple - and really don't suck at all. They have not had pacifiers and
> bottles were introduced as a result of low weight gain after a few days of
> efforts to feed at the breast and using other methods at the breast that
> didn't work, either - as the baby wouldn't suck there!
>
> All three of these have had similar oral anatomy and I was wondering what
> else to do - NONE ever successfully latched on although two had moms who
> provided 100% of the milk they needed for many months.
>
> All three had high palates with LOTS of rugae all the way back - not just
> right behind the gumline. (In writing this I did a google search and found
> a study trying to see if a pattern of palate rugae was connected with clefts
> of the soft palate: "The pattern of palatal rugae in submucous cleft palates
> and isolated cleft palates" - but they were looking at people that had
> already been diagnosed with clefts).
>
> All three had no visible tongue-tie and tongue extended beyond the lower
> gumline
>
> All three also had difficulty initiating bottle feeding, though eventually
> the parents learned how to feed the baby in what LOOKED like a "normal" way
> - and took bottle nipple deeply, etc. AND babies would accept "paced bottle
> feeding."
>
> However they never latched on to the breast.
>
> I did a suck check on the baby last night and also found he would not suck
> my finger with or without milk stimulation...finally he did, and I DID feel
> negative pressure, so I think there is no cleft ??? is that accurate?
>
> Suggestions? Ideas?
>
> Mom is pumping and feeding but she really wants to BREASTFEED!
>
> Jeanette Panchula, BSW, RN, PHN, IBCLC
> California, USA
>
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