"Many women I know would be offended by hearing their
child referred to as being a "Down's kid" or "Marfan's child." How
does it
sound if we say "a cancer woman," for example? Such wordings seem to
be
experienced as putting undue emphasis on the disorder and inadequate

emphasis on the person. The child is a child first. Having a
disorder is
one--and only one--aspect of that child's being. Of course,
different
mothers are offended by different things. However, the odds of
offending in
such circumstances seem less when using such phrases as "a child
with
Marfan's syndrome," as was done in the first part of the above
sentence."

Cindy,
I would NEVER use such terminology in speaking with a mom, I would
use the "a child with Marfan's" as I did earlier in the post.
However, I was trying to take shortcuts in my post to professionals
( I had only a few minutes before I had to leave) so I used 2 words
instead of 5.  Sorry if this was offensive.  It certainly wasn't my
intent.

Winnie

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