Has anyone had experience of helping a baby to feed with this problem?
It causes blisters and severe damage to the skin on contact with
anything. In its most severe form it is fatal.

The baby I am in contact with is 4 days old and the first breastfeed
caused blisters inside his mouth. Obviously he is now reluctant to take
Mums breast into his mouth even though he is hungry. Mum is very patient
with him and is determined that he will be breastfed. We have been told
that babies with this do not breastfeed, but he is managing so far.
Would be grateful for any tips from those who have been there, done
that.

Regards,
--
Carolyn Westcott RN IBCLC Southampton UK
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