Lu writes asking for experiences with Goldenhar. I have a 10 year old nephew with Goldenhar Syndrome. He was not breastfed, but I have always wondered how difficult it would have been; as well as how potentially helpful it may have been to the development of his facial muscle development, speech development, and general health. He has had more than 5 surgeries, several of which were quite extensive and painful, from about age 4 onward to develop the left side of his jaw. However, he is a real trooper and has adjusted well to the questions he gets from others about his missing ear. The surgeries have resulted in a much more balanced looking jaw and face. Prosthetic ear placement will be attempted in a few more years. He has had other chronic health conditions, including extensive allergies as a toddler. I am not certain whether these are related to the syndrome, or unique to him. If these parents would like to be connected to others who have "been there," please contact me privately. I'm sure his family would be happy to share their experience. Cindy Turner-Maffei, MA, IBCLC Massachusetts, USA *********************************************** The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html