Hi all!  I am posting this for a fellow IBCLC that has not been able to
access Lacnet from work as of yet.  She received a call today from a woman
that has an 18 mos. old son who has Barth Syndrome.  This syndrome consists
of dialated cardiac myopathy plus neutropenia.  The woman is expecting
another child soon, and is wondering how breastmilk may help her current
child.  She is thinking that the breastmilk may help her child fight
infections (these children are succeptable to bacterial infections
according to the mom).  She is wondering how much breastmilk she should
give her child with the syndrome to help his immune system??  The other lc
and myself of course totally agree that this is a good idea--but are
clueless as to a "dosage" of breastmilk.  Any ideas??

                                      Pam Holland, BS, IBCLC
                                       Savannah, GA