Dear Dr. Von Lanten, Your name and address were given to me by a number of people on Lactnet. The e-mail address I was given will not deliver to you so I am posting here. (Does anyone have Dr Von Lanten's e-mail address?) I would greatly appreciate any advice you could offer to me about my baby, Rhiannon. My baby's history follows: Birth 4-1-97 Girl, Good birth, 8 lbs 2 days old I noticed baby was blue around lips after nursing ultimate diagnosis: Total Anomolous Pulmonary Venous Return Surgery at 8 days Some feeding, latch-on problems post-op/ NG tube 2-3 days Baby down to 6lbs. 7oz Discharged at 2wks of age weighing 6lbs. 11oz Slow weight gain ever since Now at 4 mo- 9lbs 3oz Baby nurses every 2-3 hours, good number of wet diapers and bowel movements. Developmentally age appropiate. Post-op baby was diagnosed with Long GT Syndrome, however no EKG since can turn this up again. However this condition does preclude many different meds. Experiences "chest problems"- wheezing, coughing, choking on mucous Shows signs of reflux, cries after 10 min. at breast, etc. Upper GI shows no other abnormalities, DR assumes reflux baby is taking: Inderal-every 6 hrs Lasix-1x day xantac-2x day regulan-4x day Mother has tried pumping hind milk and using it in SNS- no noticable improvement Toddler nursing 1-2x day. baby is gaining barely 1/2 oz per day at this point. Dr Kurt Brown, pediatric gastroenterologist at Childrens' Hospital of PA, wants to see 1oz to 1 1/2 oz per day by August 11th or will begin NG tube (pump at night) I am concerned about the effect this will have on baby's breastfeeding, baby reacts to dairy in my diet. Thank you in advance for any help you may offer. Sincerely, Tami Walker [log in to unmask]