Carrie, I do feel your pain and frustration and hope you will soon find a solution. I sent you a post a while back about having nasal stents placed. I don't know if that was even a workable option. What about a return to the ENT surgeon or a second opinion with another one? It just seems this cannot be right for the baby not to be able to breathe and nurse. Maybe local anti-inflammatory nasal drops, maybe something like neosynephrine drops before a fdg try. Of course, approve with physician first. Would a consult with an OT who specializes in infant fdg be available to you? Good luck to you and your baby. Laurie wheeler