Dear Jaye, What good work you've already done by being there for this mom and offering your support. Never underestimate the power of this; it is most often more of what moms need than research or additional information. I don't need to negate that often moms need and appreciate our doing some research for them and finding info and support resources in the community, however, having worked recently with a mom whose baby had possible craniosynostosis, I realize what I offered her most was support for many months, and it is this she needed so much. She was always ahead of me with her internet researching, but the one thing she couldn't get from a machine, was a phone call, a hug, and yes lots of emails, too. Listening, validating feelings, acknowledging that it's tough, makes a difference. Perhaps, this isn't exactly what you were looking for as an answer, but I have realized over the years how important all the above is to moms in crisis. As this mom may be aware of, though probably thinking the worst, CP has all levels of severity. With early therapies, some disabilities can be lessened and even prevented. All the usual goodies babies deserve, like carrying in a sling or soft carrier, being spoken to/sung to, infant massage with PT/OT guidance so as not to cause more tightness or spasm of muscles, and of course, breastfeeding can put this baby ahead. Maybe you could accompany her to baby's therapy, if ok with mom, and in that way learn more, too. I just remembered something that can be helpful and that is when talking with her remind her to do one nice thing for herself eveyday, no matter how small it is. It sounds like you've been then for her for awhile and I'll bet she'd appreciate your continuing contact and support; good work, Jaye. Barbara Latterner, BSN, RN, IBCLC *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(R) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html