Hi all, Ok, several things have come to pass. To refresh, baby is now 10 wks old, not meeting milestones, avoiding visually, dysfunctional suck, lots of aspiration, etc. Mom and dad took baby to see the neuromuscular therapist who found baby's spine to be really out of alignment, There was some spinal cord pressure in the middle upper back as well as at C-1. Possible pressure on the brain stem. She did a lot of work with baby, the back muscles were REALLY tight - you can feel them like cords - they aren't supposed to be that way. She was unable to do an exam of baby's mouth because it was just too tender, possibly due to the frenotomy. Parents took baby to see a Pediatric Neurologist 2 days later who diagnosed Cerebral Palsy. He is ordering an MRI for this Monday, full battery of tests - everything that can be run will be run to find out just how severe this is. His comment tho for mom, was that baby is doing well given her efforts to make sure he is fed well. Most babies, he said, would have been admitted to the hospital already for FTT due to his suck disorder. Good Job mom! Family is doing infant massage daily and I believe this is helping him. They are seriously considering a G-Tube to eliminate any aspirations from bottle feeding. The Neuro encouraged mom strongly to continue to BF as baby does not aspirate when he does and he needs the good oral associations as well as the good oral motor development that comes along with BF. The G-Tube will be used to supplement as necessary. Mom did some research and found a possible reason for baby's avoidance - Cortical Visual Impairment - which apparently is what can happen when there has been some anoxia to the brain. We think that there definitely was - but are unsure as to when this occurred - was it around 17 wks pregnant when there was a partial placental abruption or was it due to the overdose of meds mom was given in labor that nearly killed her and left her with a very sleepy non-responding baby? The Neuro is going after all the hospital records - apparently he is MOST unhappy with the situation, very concerned and will be taking excellent care of this family. (Oh, the Neuro and mom used to work together <mom is a Ped RN> and are on great terms.) Baby is being placed into an excellent program for babies and children who need assistance with PT, OT therapy of all sorts, etc. They are in good hands now. So, what else can I do to help this family besides support and helping mom maintain milk supply? What would be the better resources for me to research so that I have at least 1/2 a clue of what this family is dealing with? I have never worked with a baby in this situation so it is quite out of my experience. Mom has worked with server cases of CP in older babies in her RN days so is scared out of her wits...Hard to switch out of mom-brain in these circumstances. All of your input thus far has been very helpful. Thank you so much! Warmly, Jaye *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(R) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html