On Sat, 4 Dec 2004 00:30:20 EST, Alice Ernest <[log in to unmask]> wrote: >Anyone have any experience with this disease and breastfeeding? A mother in >our LLL group says that her sister has this condition, just stopped >breastfeeding at 10 months, but wants to get pregnant one more time. Hope it is spelled >right. I'm really enjoying the DHA discussion, frustrating that it is. >Thanks to all who answered my question about amalgam fillings. What interesting >information. > >Alice Ernest IBCLC-RLC (10 years) >Simpsonville, SC I did a Google search on epidermalysis bullosa and got 10 hits. Changed the 'a' to an 'o' and got 75,000. I found this -- <http://www.emedicine.com/derm/topic5.htm> "Causes: Symptoms of AE occur within the first few months after birth and tend to appear shortly after discontinuation of breastfeeding. This phenomenon has led many to believe that human milk has a beneficial ligand, which bovine milk lacks. Evans and Johnson postulated picolinate as the ligand; Lonnerdal et al suggested citric acid. Cousins and Smith proposed that the protein concentration of human milk affects zinc bioavailability. The nature of the metabolic defect continues to be debated. However, 2 new fibroblast proteins that are absent in the fibroblasts of patients with AE have recently been discovered. These proteins may be responsible for decreased zinc uptake and abnormal zinc metabolism" As we might have expected, breastfeeding provides protection for the infant with the condition. and this -- <http://health.allrefer.com/health/epidermolysis-bullosa- info.html> "Epidermolysis bullosa is a group of inherited disorders in which massive blistering of the skin develops in response to minor trauma." Which sounds like breastfeeding would be very difficult for the mother with this condition, unless it can be kept under control. -Claire Bloodgood, IBCLC *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(R) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html