We had a baby born today with this syndrome. Very large tongue, enlarged liver and omphacele (sp?). Also having hypoglycemia problems. Mom is pumping, baby in NICU. Surgery is scheduled to close omphacele for Monday. Has anyone out there dealt wiyh this before? I searched the archives with no luck. Thanks, Rachel Pfab, RN, IBCLC *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html