Hi Lactnet. I urgently need a LC in or near Cincinnati, OH, with some knowledge of or experience with metabolic disorders, for a mother of a ten-week old girl with MCAD, which I understand is an inborn error of metabolism that prevents normal digestion of medium chain fatty acids. Mother has been told that baby needs to eat at least every three hours 24/7 indefinitely, otherwise may lapse into coma etc. The baby took "a long time" to regain birth weight, is now under a pound above bw, is colicky (mom is now off dairy, baby's supplement is nutramigen), is increasingly aversive to both bottle and breast. Mom is attempting to nurse, pumping, bottlefeeding, etc etc. around the clock. Baby is (per mom) essentially being force-fed, and mom is distraught -- she may not be taking in technical info well, if her care providers have offered it, but in any case she needs help making a plan both to make the breast more friendly (which I could help with on the phone a bit) but also to get the baby the nutrition she needs, which if she needs both to gain weight and also to avoid fat may be challenging. I just don't have the technical background here, and the mom can't supply it, and it's time for a specialist. IBCLC to the rescue please! I am nomail (still :<) so please email directly whether or not you reply to the list. Many thanks. Elisheva Urbas New York City (she's a friend of a friend) [log in to unmask] *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html